“I have chronic fatigue.” TJJS Ep 13

ep 13

It’s official, belovedests. The increasing exhaustion I’ve been wrassling for the last nine months is now officially diagnosed as chronic fatigue. (Or Systemic Exertion Intolerance Disorder, or whatever other fancy-pants names the cool kids are using these days.)

What does that mean for me and this-here podcast? Listen and find out!

Play

And as mentioned, if you’d like to give me your thoughts, you may use the comments below, or get in touch.

Love you.

  • Erica Gunn

    I’m an occasional listener, who also happens to have chronic fatigue (going on 10 years now). Just wanted to pop up and say that it is possible for your energy level to get better (mine has), even if it feels like it never will. Or maybe what I should say is that it’s possible for you to become more effective at managing it, so that you can get more done with the same energy that you have. For me, the real secret has been to figure out how to walk the line between constantly pushing it, and never pushing it too far. I prefer to push, but there’s a very hard edge there, and if I push past it I pay. If you push right up to the very very edge and stick your toe right up to the line, you can probably still do a lot more than it feels like you can.

    I’ve found that it’s really important to keep pushing, because it’s really easy to lose ground and hard to gain it. (Pushing too far also counts as losing ground, though…use it sparingly!) I can walk for a mile right now. If I don’t walk for a week or two, it will take me a month to get back here. I have to do my best to walk a mile every day. If I get all ambitious and walk two miles, I’ll have to take a week to recover and then I’ll still have to spend that month building back up. It takes longer and you have to plan harder, but there’s lots that you can do while living with this disease. Re-training your own expectations is the hardest part, and is no fun at all…I sympathize! Good luck, and I’d say to do whatever you need to do with the podcast to get back to a point where you can be healthy and active, even with the disease.

    • http://www.CashAndJoy.com Catherine Caine

      That puts it beautifully, Erica! The constant and ever-fluctuating management of how far to push and when to pull back is one of the biggerest challenges I’m learning to deal with so far.

      “Always push, but not too far.” <— Time to write a note for myself!

      Thanks for your wonderful comment, darling, and thank you for listening.